I would love nothing more than to report positive news, something for my readers to hang onto specially if they or a love one is going through similar situation, but today that is not the case so back to the reality that I have cancer, that it is in its third mutation, that it is very aggressive and that it is deadly.
My tumors are popping out my body, not common but it happens (of course me), I have about 10 that can be seen/monitored with the necked eye and does not need the assistance of a machine or another person, basically my neck looks like Frankenstein. So after my first chemo April 9th, the tumors had stopped growing which was great news but I noticed last Friday a small change and in fact they have started growing. The plan now is to have a CT scan on May 11th (since I had my second one yesterday) and plan for chemo every two weeks starting May 14th for as long as my body and blood can take it, sadly I can tell you that it will not because as it is, I am very weak and having a hard time getting up and down.
Another unfortunate news is that there is a possibility that my loss of voice is caused by a tumor pressing in the voice box. I am of the opinion not to do surgery that is not for saving my life, but I have the right to change my mind a thousand times. We will see what the scan shows.
And then as if it was not enough, my doctor basically said that I should not drive again. I was told by the radiation specialist not to drive for concern on seizures, and now they say that with that and my weakness and some of the medication that I am taking to keep me comfortable are not suitable for someone to drive. This one hurts because no one wants to lose the little independence that they have at 56, but then again, nothing like have a chuffer… Oklahoma friends, I need a ride to go shopping.
Well, I was hoping to get a new cute picture of some sort and it does not look like I have anything new so here you will see me and my bald head.
To end on a positive note, mostly because I dislike bad news so with the bad must come the good… Pat and Kathy Byrne (thanks a million Kathy, I love them) bought me some amazing BIG earrings to distract from the baldness, Michelle got me some amazing silk bandanas and head bands, and they make me feel pretty and if I am pretty, the world is pretty. Another positive influence is that I have my neighbor from Colorado here (Linda Talley) working, working, working in my kitchen preparing food and cleaning, yum, yum. She leaves tomorrow and will give me a few days to get some paper work done before my sister Lisa arrives next week.
So you see, life is not as bad as I indicated above. Please feel free to call, I know it is hard to hear me, but I love to hear from all of you.
PS. Remember to pray for my son Michael and if you have time, check my daughters blog 'leach love' to see pictures of my beautiful granddaughter.
Love y’all,
ME
Always praying for you dear Luisa. You look beautiful.
ReplyDeleteLuisa, I've been following your postings and they always leave me at a loss for words. I'm glad that you are surrounded by loved ones; from what you wrtie it sounds like you have awesome friends and family. Dave
ReplyDeleteLuisa: I have been thinking so much about the great gifts our mothers gave us. They taught us the importance of faith and family and getting through life with a little grace. You certainly demonstrate those traits in spades. You are a wonderful beautiful person inside and out. Your family in KY loves you... Your KY cousin.
ReplyDeleteLuisa -- I look at your smiling face and I have to honestly say -- you do look beautiful. Your spirit radiates from you. You have always been a positive inspiration to me -- I don't think I've ever told you that. Life is short for all of us -- it's what we make of the time we have here on earth with our friends and family. I think of this often and the song called "live like you were dying" -- it's so true - none of us know how much time we have here. I hope and pray for you that your time (like mine, and all of ours) is time well spent with the ones we love most -- and we take the time to enjoy the day, see the clouds, feel the breeze, touch one another and be present in the moment -- as we only have moments and they go by all too quickly. I pray for you and your health -- I ask God to heal you and bring you peace of mind and comfort you knowing that you will always be with us and with your family -- we care about you. You are in my my thoughts and prayers... Cathy S
ReplyDelete